But I don't want too.....(insert 5 year old whiny voice here)

The last time I was in the hospital was in November, it was pretty routine I had a sinus infection and didn't want it to get out of hand before the holidays. (I realize referring to spending weeks in the hospital as "routine" is kind of ridiculous, but that's my world) So anyways at that point in time it had been 4 months since I had been in, which was not bad considering my spring consisted of 2 stays within 2 months. Well I have now gone 8 months without being hospitalized, which is great, it's been a long time since I've gone that long between a stay. You get where this is going don't you?! Yup I think it's time to head in for some drugs. All the tale tell signs are there, having more day's of not feeling well,laundry not getting folded or taken care of, I moan at night in my sleep when I can't breathe good, Brad says that I do this almost always when I need to go in. It's hard to explain sometimes. Do I feel terrible? No. Do I feel great? No. Do I always let myself slowly feel worse until I realize I need it? Yes. This happens because with the way I feel it kind of happens slow so I adjust to it without realizing it's even happening. Then when I go in get meds and the works, I realize how bad I felt, because when I'm done I feel SO much better. Having a tight chest the last few nights, and having to put on my O2 the other night before going to bed (I only wear it when I sleep, unless I need it which is usually only when I'm at this point) just sitting is kinda the wake up call for me. I said to Brad tonight "I need to go in the hospital" his response "Your just now saying it out loud?" Yeah he knew, he knew I knew, but like the good hubby he is lets me do it on my own time. I don't hate going in the hospital, I know that sounds ridiculous. I hate it more now that it affects Colton and Brad, but growing up being there so much I am kinda use to it. But what I do HATE is going in during the summer! That's more time Colton is home, when I am his primary care giver it makes it hard to be away, not to mention I miss him (although I will admit the first couple days away are not to bad! Oh my gosh I'm a horrible mother, I'm suppose to miss my child every minute I'm away! Well sue me then because that's how I feel! lol). Colton had a hard time last year when I was in a lot, so I'm always worried about him. I talked to him tonight explaining I hadn't been feeling good (he can always tell too though) trying to let him down easy, and he says "well maybe you need to go in then" I said "yeah I probably will" he then said "well better for you to be gone for a little bit then forever". This kid is wise beyond his years, and continues to melt my heart and bring me to tears. Now I really do feel bad for enjoying my first few day's "away"! It's sometimes hard for me having to rely on my in laws and my parents to take care of him while Brad's at work. But he's always in good hands, by the way, I have amazing in laws! I'm looking at my calendar thinking of all the stuff I'm gonna miss, pouting like a baby, my favorite band Shinedown concert, just got my car back from restoration and had some car shows in mind to take it too. Brad being that great hubby again, says "Those things don't matter!" and he's right in the grand scheme of my health they don't matter. But I still hate missing things! I am the farthest thing away from a home body, I am social and love to keep busy, "running' the roads" as we call it. But we live in a very rural area with lots of small towns 5, 10, and 15 miles apart, in which during the summer there is a festival of some sort going on almost every weekend with lots of fun, free entertainment. So I miss out a couple weekends, but I don't want too!!!! (insert that whiny voice again)

All things Disney! Warning this is long :)

As I had mentioned before we went on vacation to Disney in March. It was amazing, we stayed 5 days 6 nights, went to all 4 Disney parks, Animal Kingdom twice, and Downtown Disney. It was thoroughly exhausting to say the least but worth every second! I did really good health wise, didn't get to tired during the day and felt great the whole time. Wish I had known the whole time that had I taken my letter from my CF doctor, I could have gotten better access! We found out the last day we were there at Animal Kingdom, which allowed us to use the Fast-pass/Handicap lines, that are most generally shorter. Had I known for the rest of the parks we probably could have seen a lot more, spending less time in lines waiting. Either way we still had a blast and seen a lot of stuff. There is so much to see and do it can be a little overwhelming. I hope to go again before Colton really grows up :)

It's really hard to choose a favorite park, ride or attraction. I loved the Magic Kingdom because of it's Magical feel. You really get the Disney movie feel there. With all the characters, and Princesses and Prince's, and parade.

Epcot had my favorite rides, Test Track, and Soarin'! With a lot of other kinda scientific stuff and evolution of culture's. It has a lake in the middle of it and all around the lake is restaurants, stores, and places representing different country's, we did not get to walk all the way around, but what we did see was pretty neat.

Brad is not into amusement parks or rides and he went on almost all of them with us, and his favorite was Soarin' too. Hollywood Studio's is probably my second favorite. It's just very cool, you feel like your on a movie set the whole time. And Tower of Terror was another favorite ride of mine.

I rode it with Brad's friend's daughter and niece that happen to be on vacation the same time we were. Brad. his friend, friend's wife, and Colton didn't want to ride it. Funny little story. We had to wait in line for quiet a while and it got to be longer because one of the "elevator's" on the ride was not working right. Well we finally got our turn, screamed our heads off had a blast on it. When we got off Colton comes running up to me like a concerned parent "What took you so long? I was worried about you! We have been waiting forever!" Hugging me the whole time, just gives you another idea of Colton's "grown up" personality. The next favorite part of Hollywood Studio's was the Stunt show. It was so cool, they showed you stunt cars, and how stunts are done in the movies. They burn a lot of rubber, and Colton says "I love the smell of burnt rubber in the morning!" LOL It was really the afternoon! The real Lightning McQueen and Mater were there too!

There are lot's of 3D and 4D shows in all the parks too, those are fun too

We went to Animal Kingdom our last two day's. Finally got Colton to ride Expedition Everest with me, it was a blast, and he did get a little scared but was good by the end of it.

The Bug's life that is in the center of the Trunk of the Tree of Life was really neat, it was a 4D show, you get fogged, sprayed, and Bugs running under your butt!

My Dream for CF..

Wow! Been too long since I blogged last! Proof I have a tendency to not finish things, the blogger challenge, I failed. Moving on..... Let's see I have been feeling great, we went to Disney in March, I'll post a blog about that soon I hope. I had clinic in May, PFT's were same, weight was same, still hoping to increase both by the end of the summer. We had the annual Great Strides walk Cystic Fibrosis in Edmore that I coordinate. We did fantastic, raising over $12,000.00! I had some great awareness opportunities this year as well. Myself and some volunteers were featured in a couple news paper articles. My cousin's daughter nominated me for a Pay it Forward Person of the Week at our local FOX news station, so they did a story about me and the work I do for the Cystic Fibrosis Foundation. That lead to some other opportunities for fund raising and future events. A local EMT/firefighter had written a book called The ER loading dock and donates proceeds to different charities. After seeing my story on the news he contacted me and wanted to donate 2 months worth of his book proceeds to the Cystic Fibrosis Foundation! So make sure you go here and get your copy by August 17th! I also volunteered at a new CF walk location this year in about 30 miles north of me. A family I meet last year through the Edmore walk decided to coordinate their own walk in their home town, their son Parker has CF. That event was today and raised over $15,000.00! I'm pretty proud of our area, with 2 walks we have raised nearly $30,000.00 for CF research, that is simply fantastic! I was asked to share "My Dream" for CF, the CF foundation has a series of videos on their youtube page of different peoples dream for CF in the future. This is what I shared today. Hi, I'm Jamie Purchase, I am 29 and I have CF. I had many dreams as a child, I wanted to be a princess, a doctor, a figure skater, a model, a beauty queen and the list goes on and on. But what I dreamed of most was to not have CF or be defined by it. My dream is the same today. I dream of a day when CF is known not because it's a deadly genetic disease, but because it is no longer a deadly disease. I dream of the day I don't turn on my computer to find another friend has lost their battle against CF. My dream is a CURE! I have lots of topics for blogs on my mind, and now that I have a laptop again I hope to post more regularly again :)

My Video 3/26/12 at OneTrueMedia.com

A few months again I posted a blog about my cousin doing a photo shoot with me in a day with CF. Well I finally got a video done with some of those photos and few of my own. I hope you enjoy it!

Make a video - it's fun, easy and free!
www.onetruemedia.com

Day 18 of 30 day blog challenge

5 Things that irritate me.

1-People that complain about something they have the ability to change or do something about.
2-Most self portraits on facebook, but more specifically self portrait addicts, you know the one friend that does it ever day, maybe even every hour, and the from up above shot, and OMG the duck face pout "I think I'm hot kiss face". I honestly think I could do a whole post on things that irritate me about facebook.
3- People that are not appreciative of what they have.
4- Jersey Shore. I simply cant stand the fact that they make millions off the degrading, distructive behavior they display. Also hate the influince it has on young people.
5- People that still use their cell phone in the movie theater! Turn it off or I will turn you in! Yes I'm the tattle tale :)

Day 16 and 17 of 30 Day blog Challenge

I'm doing day 16 and 17 together.
Day 16 - Describe a passion you have.

I like to think I have a lot of passions in life. But I think mostly their just interests. What I can tell you I know I'm passionate about. Being a mom, I love Colton beyond anything I could ever imagine. But it's not just my love for him I'm passionate about, it's raising him to be a wonderful man, husband, and citizen. Love is not enough to do that, I mean yes it takes lots of love and patience, but it also takes the right kind of discipline and guidance. The love is the easy part, the other stuff not so much, but I love him enough to teach him the difference between wrong and right. I would not be doing him any favors if I didn't.

Another passion of mine is my husband and our marriage. We have been together almost 9 years, married 8. When we got married to each other we talked about it a lot, and even had to have per-marital counseling. Both our parents are still married, and we verbally agreed before the wedding that divorce is not an option, ever! We had a few rough years, and let me tell you it was not easy! But we came out of it stronger then ever and I am so thankful we both have the drive to fight and never give up on each other no matter the obstacles.

I am passionately in love with my dogs!

My last passion that really gets me excited and feeling full of life is Drag racing my 69' Chevelle! I can't wait to have it back and running again, there is no other feeling like running 103 miles an hour down the track, trying to get the best time and beat the guy next to you. Track opens in April!


Day 17 - How you hope your future will be like.

Long, healthy, and hopeful!

Day 15 of 30 Day Blog challenge

Something you don't leave the house without.

My purse. I was thinking my cell phone, but I forget that, a lot actually, and at the worst times too. Like when I'm running late, or like the other day I suppose to be meeting someone and needed to call them. I've been known to leave my purse to though, and not just at home, restaurants, doctors offices, and store dressing rooms. Brad always ask now when we get in the car "got your purse,got your cell phone?" I always answer yes, and then sometimes I will say yes, no oh s#*t! LOL