Sunday, May 12, 2013

Knowing when it's time to head to the hospital.

I have talked in other blog post about certain signs to me that I may need to go in for a clean out. Being tired more, not being able to keep up with household chores, getting short of breathe faster with things that don't normally make me short of breathe are some. Then there's startng to need O2 more than just at night, Brad telling me I am moaning at night, I apparently do this more frequently when I am close to a clean out. Now there is a new factor for me, Colton has started to get clues he picks up on as well that I might not notice, and tells me "Mom I think it's time for a clean out!" in his matter of fact way. Seems theres never a "good" time to go in, I mean to avoid it at all cost is the goal, but that just doesn't happen in my world. So when I start to think about it and when it would be a good time to go in, sometimes there's a time period where nothing major is going on that I can just get put away and get better for a few weeks. But most the time CF's timing is really crappy!

You get where I'm going with this don't you?!? It's that time all the symptoms are there, and worst of all I've had to wear my O2 almost all day every day since Friday. So I'm calling clinic tomorrow morning, they will probably offer oral anti-biotics, I will decline because 9 times out of 10 they don't work and I don't have time for that! I usually just tell them I need Iv's and they say "okay you know your body better than us" they set it up and I'm off and running for my 3 week clean out. So last time I was in in January it was horrible timing because Janet was in the worst battle fighting cancer. This time around it sucks too! My Great Strides for CF walk is Sunday May 19th! When I get a clean out I do at least 2 weeks in patient, that leaves me in the hospital the day of my walk one week from today, so my plan of action may change up a bit this time. I may go in and get started and then finish up on home Iv's, or I may go in and stay my 2 weeks and take a LOA (leave of absence) for those few hours that day than go back and finish up my stay. Either way I just can't see myself missing my walk, I  am the chairperson for this walk, I do almost all the work for it, and am pretty much the only one that knows how everything gets done that day! Would it go on and be as successful without me there? Yes I'm sure it would, but i just can't stand the thought of missing it, it's my baby! Either way it will be fine and life will go on, but as always I have to do what's best for my health.