My thoughts and feelings on different life experience's and being a Mom living with Cystic Fibrosis.
Sunday, July 15, 2012
But I don't want too.....(insert 5 year old whiny voice here)
The last time I was in the hospital was in November, it was pretty routine I had a sinus infection and didn't want it to get out of hand before the holidays. (I realize referring to spending weeks in the hospital as "routine" is kind of ridiculous, but that's my world) So anyways at that point in time it had been 4 months since I had been in, which was not bad considering my spring consisted of 2 stays within 2 months. Well I have now gone 8 months without being hospitalized, which is great, it's been a long time since I've gone that long between a stay. You get where this is going don't you?! Yup I think it's time to head in for some drugs. All the tale tell signs are there, having more day's of not feeling well,laundry not getting folded or taken care of, I moan at night in my sleep when I can't breathe good, Brad says that I do this almost always when I need to go in. It's hard to explain sometimes. Do I feel terrible? No. Do I feel great? No. Do I always let myself slowly feel worse until I realize I need it? Yes. This happens because with the way I feel it kind of happens slow so I adjust to it without realizing it's even happening. Then when I go in get meds and the works, I realize how bad I felt, because when I'm done I feel SO much better. Having a tight chest the last few nights, and having to put on my O2 the other night before going to bed (I only wear it when I sleep, unless I need it which is usually only when I'm at this point) just sitting is kinda the wake up call for me. I said to Brad tonight "I need to go in the hospital" his response "Your just now saying it out loud?" Yeah he knew, he knew I knew, but like the good hubby he is lets me do it on my own time. I don't hate going in the hospital, I know that sounds ridiculous. I hate it more now that it affects Colton and Brad, but growing up being there so much I am kinda use to it. But what I do HATE is going in during the summer! That's more time Colton is home, when I am his primary care giver it makes it hard to be away, not to mention I miss him (although I will admit the first couple days away are not to bad! Oh my gosh I'm a horrible mother, I'm suppose to miss my child every minute I'm away! Well sue me then because that's how I feel! lol). Colton had a hard time last year when I was in a lot, so I'm always worried about him. I talked to him tonight explaining I hadn't been feeling good (he can always tell too though) trying to let him down easy, and he says "well maybe you need to go in then" I said "yeah I probably will" he then said "well better for you to be gone for a little bit then forever". This kid is wise beyond his years, and continues to melt my heart and bring me to tears. Now I really do feel bad for enjoying my first few day's "away"! It's sometimes hard for me having to rely on my in laws and my parents to take care of him while Brad's at work. But he's always in good hands, by the way, I have amazing in laws! I'm looking at my calendar thinking of all the stuff I'm gonna miss, pouting like a baby, my favorite band Shinedown concert, just got my car back from restoration and had some car shows in mind to take it too. Brad being that great hubby again, says "Those things don't matter!" and he's right in the grand scheme of my health they don't matter. But I still hate missing things! I am the farthest thing away from a home body, I am social and love to keep busy, "running' the roads" as we call it. But we live in a very rural area with lots of small towns 5, 10, and 15 miles apart, in which during the summer there is a festival of some sort going on almost every weekend with lots of fun, free entertainment. So I miss out a couple weekends, but I don't want too!!!! (insert that whiny voice again)
Friday, July 6, 2012
All things Disney! Warning this is long :)
As I had mentioned before we went on vacation to Disney in March. It was amazing, we stayed 5 days 6 nights, went to all 4 Disney parks, Animal Kingdom twice, and Downtown Disney. It was thoroughly exhausting to say the least but worth every second! I did really good health wise, didn't get to tired during the day and felt great the whole time. Wish I had known the whole time that had I taken my letter from my CF doctor, I could have gotten better access! We found out the last day we were there at Animal Kingdom, which allowed us to use the Fast-pass/Handicap lines, that are most generally shorter. Had I known for the rest of the parks we probably could have seen a lot more, spending less time in lines waiting. Either way we still had a blast and seen a lot of stuff. There is so much to see and do it can be a little overwhelming. I hope to go again before Colton really grows up :)
It's really hard to choose a favorite park, ride or attraction. I loved the Magic Kingdom because of it's Magical feel. You really get the Disney movie feel there. With all the characters, and Princesses and Prince's, and parade.
Epcot had my favorite rides, Test Track, and Soarin'! With a lot of other kinda scientific stuff and evolution of culture's. It has a lake in the middle of it and all around the lake is restaurants, stores, and places representing different country's, we did not get to walk all the way around, but what we did see was pretty neat.
Brad is not into amusement parks or rides and he went on almost all of them with us, and his favorite was Soarin' too. Hollywood Studio's is probably my second favorite. It's just very cool, you feel like your on a movie set the whole time. And Tower of Terror was another favorite ride of mine.
I rode it with Brad's friend's daughter and niece that happen to be on vacation the same time we were. Brad. his friend, friend's wife, and Colton didn't want to ride it. Funny little story. We had to wait in line for quiet a while and it got to be longer because one of the "elevator's" on the ride was not working right. Well we finally got our turn, screamed our heads off had a blast on it. When we got off Colton comes running up to me like a concerned parent "What took you so long? I was worried about you! We have been waiting forever!" Hugging me the whole time, just gives you another idea of Colton's "grown up" personality. The next favorite part of Hollywood Studio's was the Stunt show. It was so cool, they showed you stunt cars, and how stunts are done in the movies. They burn a lot of rubber, and Colton says "I love the smell of burnt rubber in the morning!" LOL It was really the afternoon! The real Lightning McQueen and Mater were there too!
There are lot's of 3D and 4D shows in all the parks too, those are fun too
We went to Animal Kingdom our last two day's. Finally got Colton to ride Expedition Everest with me, it was a blast, and he did get a little scared but was good by the end of it.
The Bug's life that is in the center of the Trunk of the Tree of Life was really neat, it was a 4D show, you get fogged, sprayed, and Bugs running under your butt!
The best part of Animal Kingdom is the Safari, and per everything Disney they act out everything to keep it real for the kids which is very cool! On the Safari you are on the hunt for poachers, but you ride through and get to see lots of real animals, Crocodiles, Giraffes, Elephants, Lions, Hippo's, and many more sometimes up close.!
Animal Kingdom also had the best place we ate at all week, The Rain Forest Cafe', very delicious! The Cheese Cake drizzled in chocolate and raspberry sauce was to die for, I'm drooling just thinking about it now :) We spent the last night there at Downtown Disney, which has lot's of shopping! Colton wanted to go to the Lego store, I wanted to go to the Disney store, and Ghirardelli Chocolate store! We also went to the Christmas store and got a Mickey tree ornament to remember our vacation. It was over all really a Magically vacation and I can't wait to go back. I learned a lot of things to do and not to do, but that always comes with a first time experience with anything. I am hoping to write a guide from my experience for those first timers, and a friend who has asked me about it. I have been on vacation with drawl ever since!
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