Why I Fight for a Cure for Cystic Fibrosis...
To live for Colton, my 7 year old son. That is the very first thing that comes to my mind when people ask. And then there are the other reasons that come to mind immediately after that. My husband, no one signs on to be a widower. My Mom and Dad no parent can imagine outliving their child. My Brother, he's one of my best friend's. My Grandma's, they once thought that they would outlive their grand daughter. For everyone in my family immediate, distant, and friends whether they are my best closest friends or the friends I have on facebook that I've never meet. You could say that I fight because I almost think it's expected of me, I mean what else do you do when faced with adversity. This is my life, I know no different, I have no idea what it's like to NOT fight for my life. And to be completely honest I wouldn't have it any other way, true I would love a cure and be "normal" or "healthy" for obvious reasons. But I almost guarantee I have a better appreciation for life then the average person, and appreciate the little things with more gusto. To me this is easy, when I think of the awful things in life me fighting CF is not one of them (most the time). The awful things is my Grandma losing her Son and Husband within 2 months of each other, a friend I went to school with and her 3 year old son dying in a horrific car crash leaving her 5 year old daughter motherless, and Scot and Mindy Christenson losing and having to bury their baby boy at just days old. Those things are awful, if this is the only burden I carry compared to some other awful things in life I can more then handle it. Then there is for all the other CF'ers out there, that my life has in some how helped with fund raising and research enough that soon a baby born with CF will be nothing, and those of us living with it will have our progression stopped in it's tracks so we can live our lives out long beyond what was expected for us. Which for those who don't know, my parents were told I would not live past elementary school, I have a diploma, I would never be old enough to marry, I have been married for 8 years, I could never have children, my son is the light of my life! And it comes full circle to why I fight.
Please take a look at this video that was put together by Emily's family and friends.
Emily's Entourage Video
Then take the challenge below!
Here are your official rules for participation:
1) View Emily's amazing video here, then consider making a donation of your own or "liking" her page on FB (neither is required, but both are encouraged!).
2) Create your own blog post, FB status update, or other form of social networking tool (letter, email, whatever). In the body of the message, place a small paragraph of why YOU fight for a cure for cystic fibrosis and why this cause matters to YOU. This can be your CF story, your wish for the holidays, your version of community -- whatever.
3) Link to Emily's Entourage Website and encourage your own readers to take up the challenge.
4) Comment on Piper's blog amatteroflifeandbreath.blogspot.com (it won't link for me for some reason) with a link to your blog a message about how you shared this vision for an automatic entry into a drawing for a very special CF/transplant-awareness prize package, including gifts from iheartguts.com, apparel, and other fun goodies!
5) Re-post these rules on your own page.