My thoughts and feelings on different life experience's and being a Mom living with Cystic Fibrosis.
Tuesday, August 31, 2010
Dog part 4
Sunday, August 29, 2010
Dog part 3
I will update after tomorrow when I know more.
Friday, August 27, 2010
Dog Part 2
If you haven't read Part 1 you should do so with this link Dog my first child part 1
So Dog was a healthy good puppy. She had a few BAD DOG moments, but honestly she was really good, the one thing she did like to do was get into my mom's plants rip them up or tip them over, and my mom is a plant enthusiast so she has lots of plants! But she was getting big! She kept growing and growing and eating though my wallet in dog food. I knew when I got her she would be big since her mom was a large St. Bernard, but I really had no idea she would get as big as she did. I got her in January and was like I said before having huge transitions in my life. She was a huge part of my getting through some tough times. I meet Brad in March and Dog was 4 months old still a puppy, but a very large and playful puppy. Lets just say she was very fond of Brad but the feeling was not mutual! Brad liked to wear hooded sweatshirts with the ties in them and Dog loved to attack and chew on his ties, so she was always on him and in his face. I could tell he really didn't like her, but he liked me so he pretended it was fine and that he liked her. He learned to love her over time. By the time she was a year old I had gotten married, moved to a new house and was gonna have a baby in a few months. I was really worried about bringing Colton home to this huge dog, I knew she would never hurt him intentionally but might on accident. She loved to greet you at the door in your face with kisses by jumping on you. We loved this but it would not be ok with a baby in tow. We broke her of this habit by greeting her at her level more calmly and giving her love before trying to run in and ignore her. After Colton was born she calmed down a lot! This is when she started getting less attention. But she stilled loved to chase cats, play with the neighbor dogs and chase people riding horses. She was a great Dog only leaving the yard to go to the neighbor guys house, for good reason, he would make her homemade meals! One night she got left out while I was gone and a rain storm started before I got home. I got home and searched frantically for her, she was no where to be found went to bed worried sick only to find the next morning he had let her stay with him when it started raining and she stayed the night on his couch. Some of her other cooky habits that drove us nuts and made us laugh, she liked to bite at your hands if you had gloves on, and chase and bite at your feet with boots or shoes on! It was weird, annoying and hilarious at the same time. When Dog was almost 2 we decided to get another dog, we thought it would be good for her and she would be able to teach the puppy the good habits she had. So we got a yellow lab mix and we named him Casper. They were good together, but he was much harder to train and that was Brad's job this time because I was taking care of Colton who was 7 months old. Well over the course of a year we had moved again, Casper ended up being tied on a chain all the time because he was a runner and I couldn't keep my eye on him and an infant. So Dog was back to the only Dog in the house. Colton loved her and until recently she was not a fan of his. Over the years she has been a great dog probably been ignored more then she should have, and has spent a majority of her time sleeping on my bed. She developed a skin problem and gained a lot of weight, we found out she has a thyroid condition this caused her skin problems and her weight to get up to it's highest of 175! She has been on meds for this a couple years and has lost a lot of weight down to 130 and her skin is shinny and smooth again. I have such a bond with her that she senses when I'm sad and will seek me out to try and make me feel better. She knows when I am getting sick, I can almost tell when I need Iv's by how she treats me, she won't leave my side and follows me everywhere. The first time I had to go in the hospital that Colton was old enough to realize I was going to be gone, I was very upset while I was packing started crying and having an anxiety attack, I laid down on the bed to try and calm myself, she came up on the bed and laid over top of me and would not move until I was calm, and you can not move her if she don't want to be moved! She is special and I love her very much.
Part 3 coming soon
Dog my first child Part 1
Tuesday, August 24, 2010
Speech I wrote for Great Strides event
This is something I wrote to share with people at a great strides walk a couple years ago and thought I would share it on here. I was unable to make it to the walk because I was in the hospital but a friend relayed the message for me.
My name is Jamie I am a wife, a mom, and a daily fighter of Cystic Fibrosis, (CF). My parents got the diagnosis of CF when I was 2 weeks old, they were told I probably wouldn't live to be a teenager. I will be celebrating my 26th birthday next month This is in part to major funding and research from events like this and Cystic Fibrosis Foundation, that's why this event and the Cystic Fibrosis Foundation is so important to me. The funding from this event and others like this are what has enabled me to beat this disease as long as I have.
Growing up with CF was not easy as a child. I always had medicine and therapy's to take and do, this always made it hard to make friends, keep friends, and have regular playtime with friends. This was also hard because I was living for everyday and didn't think I would graduate high school, told I would be lucky to make it to 16. As new research came and new treatments were available that median age was raised to 20, when you get to high school it's all about planning to make your future. By the time I made it to high school the idea of making plans for my future was hard, I didn't want to waste the years I had in school. So I didn't I chose to date, work, and eventually marry and have my son. Also being told you only have so many years to live can do a number on your physiological health. But it can also be a gift, I was given the opportunity to live life to the fullest and experience things in life in the time that I thought I had. And yet with more drugs and therapy's came more years to live. When I got married when I was 21 the median age was 32, two years later it changed to what it is now which is 37.
With these added years comes added life, but also added challenges. All the new medications and treatments mean more time and energy into my health, which is time and energy taken away from the things I love such as family, hobby's, and even the ability to have a job or career. To give you an idea of what these treatments and medications entail I'd like to give you a run down of the things I do during the day. I take no fewer then 11 separate medications a day to manage my CF. I wish this meant that I only had to take 11 pills a day, but thats not the case I take approximately 50 medication each day. These medications include several different pills as well as inhalers. My treatments also include several different lung clearance exercises. These are designed to loosen up mucus so that I can cough it out easily. One of those is a chest vest that I put on twice a day, it shacks me to loosen the mucus, each session takes about 30-40 minutes. The other lung clearance that I do is cardio and weight training about a hour a day. I also have do nasal washes twice a day to clear mucus from my nasal passages. These treatments and air way clearance exercises take up a great deal of my day. I do all this daily in the hopes that it will keep me infection free for months,and if I'm lucky up to a year and sometimes longer. As much as I keep up with these treatments daily it does not guarantee that I won't get an infection and be put in the hospital for what is called a clean out in the CF world. I have been hospitalized more then several times in my almost 26 years, my friend is relaying my message today because I am currently in the hospital, my third time in the past 12 months. These hospital stays require me to stay in patient for 1-2 weeks, and under go vigorous lung clearance and IV antibiotics. All of these things are what I do to maintain my health, I also have daily duties as a mother and wife that can sometimes add stress to my routine. The older I get the harder it is.
I'm telling you all of this because this is the reality of this disease that I fight on a monthly, weekly,and daily basis. I would give anything a side from family if it meant I didn't have to fight this anymore. That's why I need your help to raise not only money but awareness. The Cystic Fibrosis Foundation uses the phrase "adding tomorrows everyday" as their tag line. I am deeply appreciative of all the work that they do and for the ways that fund- raising efforts are enabling researchers to make "Great Strides" toward finding a cure for CF. The foundation has lived up to their motto and has done much to add many tomorrows for those of us with CF. But they can't do it alone they need everybody they can find to get involved, and to get their friends and family involved. We need all the people we can get to beat this disease. As I stated before I will celebrate my 26th birthday next month. The odds that I will get to celebrate my 37th birthday are 1 in 2. I thank all of you for getting involved to raise money for CF, it is greatly appreciated. I don't want to die waiting for a cure when so many others have already lost their life waiting.